Hope For Families Of Children With Congenital Heart Defects

Author : Lynda T. Young
Publisher :
ISBN 13 : 9780979780028
Total Pages : 0 pages
Book Rating : 4.20/5 ( download)

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Download or read book Hope for Families of Children with Congenital Heart Defects written by Lynda T. Young and published by . This book was released on 2010-06-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The devastating words Congenital Heart Defect thrust parents of more than 36,000 children annually into a frightening, dark tunnel—dramatically changing the dynamics of each family. Because CHD, attacks unexpectedly, parents reel, bombarded with information regarding treatments, tests, and decisions—as parents echo, "I’ve never felt so alone. I can’t believe this is happening to us." From the initial diagnosis and throughout the daunting journey, the twelve chapters and resources in this guide weave advice, support, and hope from fellow travelers and medical professionals who come alongside through encouraging short stories, refreshing helpful hints, and inspiring scriptures and prayers. Many weary parents pull apart as communication breaks down during these devastating times—sometimes far apart. You-niquely Made is a section that helps family members appreciate different personalities and methods of coping. Overwhelmed families find comfort and courage as they read about the struggles parents face, balancing needs of their child and family (the set-aside spouses and the invisible ones—siblings) and self—the caregiver. Readers come to understand—the new normal of congenital heart disease. Heartfelt stories also include becoming your child’s advocate, reactions to stages of grief including unexpected waves and survivor’s guilt. This second book in the "You Are Not Alone" book series joins national award winning, Hope for Families of Children with Cancer, shining rays of light in the darkness.

Author : Jennifer Jackson
Publisher :
ISBN 13 : 9781736816417
Total Pages : 26 pages
Book Rating : 4.11/5 ( download)

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Download or read book Rainbows & Storms written by Jennifer Jackson and published by . This book was released on 2021-04 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt: Enter into the world of two young girls, each diagnosed with congenital heart disease, and witness how their unique paths translate into an instant connection between them. Their rare journeys, complete with surgeries at young ages and other complexities difficult for children to process, lends itself to forging a friendship that has given them the confidence to endure the lifelong fight against their CHDs and the emotional challenges that follow. The rainbows and storms the girl face side-by-side creates a special bond that helps carry them through challenges, yet also normalizes their childhood, including embracing their warrior zipper scar. Faith, hope, and love is instilled in the girls from their mothers and proves to be the anchor of all the uncertainty and their roadmap for learning to support each other along the way.

Author : Amanda Adams
Publisher : Behler Publications
ISBN 13 : 1933016795
Total Pages : 323 pages
Book Rating : 4.95/5 ( download)

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Download or read book Heart Warriors written by Amanda Adams and published by Behler Publications. This book was released on 2012-06-12 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.

Author : Anna Marie Jaworski
Publisher :
ISBN 13 : 9780965250818
Total Pages : 318 pages
Book Rating : 4.14/5 ( download)

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Download or read book The Heart of a Mother written by Anna Marie Jaworski and published by . This book was released on 1999 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the kind of book that every person involved with families living with congenital heart defects should have. Inside you will travel from the point of discovery, to finding support and on through having hope for tomorrow as you meet over sixty inspirational women. These women come from all over the world but they have a very strong bond--they all live in the congenital heart defect community. Book jacket.

Author : Jeanette de Richmond
Publisher : American Library Association
ISBN 13 : 155570980X
Total Pages : 427 pages
Book Rating : 4.08/5 ( download)

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Download or read book The Medical Library Association Guide to Finding Out About Heart Disease written by Jeanette de Richmond and published by American Library Association. This book was released on 2013-10-10 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heart disease affects millions of people every year. The MLA Guide to Finding Out About Heart Disease organizes and offers evaluated print and online resources to help readers develop a collection or research specific medical options, incorporating important data and key concepts about risk factors and symptoms of heart disease.

Author : Catherine A. Neill
Publisher : JHU Press
ISBN 13 : 0801873673
Total Pages : 463 pages
Book Rating : 4.76/5 ( download)

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Download or read book The Heart of a Child written by Catherine A. Neill and published by JHU Press. This book was released on 2003-04-01 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: From birth to adolescence, from doctor's office to playground. Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems. The first edition of The Heart of a Child was widely praised for helping families understand and cope with heart disorders, and many support organizations and websites now recommend this book as "must have" for families. Reflecting changes in treatment and new knowledge about genetics, as well as changes in the system for health care delivery, the text and illustrations have been thoroughly updated with the latest developments in understanding and treating heart problems in children. The second edition includes: • New and updated information on the genetics of heart defects, including syndromes associated with heart defects • Descriptions of new approaches to treatment, including surgery and medication • Advice on how to deal with managed care • Information about advances in prenatal care • Updated list of websites, references, and resources for families • A note to grandparents Written by experts in pediatric cardiology from the Johns Hopkins Medical Institutions and the University of Utah Medical Center, this new edition of The Heart of a Child uses case examples, questions-and-answers, detailed drawings, and careful descriptions to explain the causes of heart disorders, how they are discovered and diagnosed, how they affect children, and how they are treated. The overriding principle of modern treatment is to restore the child who has a heart problem to the best possible health with the minimum of tests and procedures. The Heart of a Child helps parents understand the challenges, the options, the decisions—and the many reasons for hope.

Author : Bret Baier
Publisher : Center Street
ISBN 13 : 1455583642
Total Pages : 262 pages
Book Rating : 4.45/5 ( download)

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Download or read book Special Heart written by Bret Baier and published by Center Street. This book was released on 2014-06-03 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fox News Channel anchor Bret Baier shares the New York Times bestselling story of his son Paul's ongoing battle with heart disease, and how it transformed his own life and family. This deeply touching personal story is told through the eyes of a journalist as he faces his life's greatest crisis: caring for his critically ill son. With the acute insight of a seasoned reporter, and the deep love of a husband and father, Baier shares behind-the-scenes stories and emotional narrative of young Paul's life thus far. Bret and his wife Amy emerge-just like their brave young son-scarred but infinitely stronger, and clearly understanding what matters most in life. Told by a loving father and master storyteller, this hope-filled account offers an inspirational glimpse into the family of a man who just happens to be someone millions turn to for the day's news. One hundred percent of what the author receives from the sale of this book is donated to various non-profit pediatric heart causes.

Author : Rick Gallegos
Publisher : AuthorHouse
ISBN 13 : 1449037607
Total Pages : 70 pages
Book Rating : 4.04/5 ( download)

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Download or read book Born With A Broken Heart written by Rick Gallegos and published by AuthorHouse. This book was released on 2010-02 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alex's heart book, Born With A Broken Heart, is an inspirational and educational children's book. It is our hope that this book will give parents and children the opportunity to learn about congenital heart disease (CHD) and to spread CHD awareness throughout the world. It is also our wish that the courage and spirit Alex showed in life will inspire others who face challenges to do so with faith, passion, and unconditional love. This book will be available through the following websites: 1) http: //www.authorhouse.com 2) http: //www.alexheartfund.com 3) Facebook Causes - Children's Heart Fund in Memory of Alexander Xavier Gallegos Illustrated by: John Shallenberger

Author : Wendy Votroubek
Publisher : Jones & Bartlett Learning
ISBN 13 : 0763755869
Total Pages : 763 pages
Book Rating : 4.67/5 ( download)

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Download or read book Pediatric Home Care for Nurses written by Wendy Votroubek and published by Jones & Bartlett Learning. This book was released on 2010-09-15 with total page 763 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.

Author :
Publisher : Two Harbors Press
ISBN 13 : 9781935097983
Total Pages : 493 pages
Book Rating : 4.89/5 ( download)

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Download or read book Matters of the Heart written by and published by Two Harbors Press. This book was released on 2010-06 with total page 493 pages. Available in PDF, EPUB and Kindle. Book excerpt: Congenital Heart Disease (CHD) has a way of stopping everyone in its tracks. That is what it did to Sandra Kay when she first met Chloe – who became the inspiration for this book of incredible stories. "Matters of the Heart – Volume 1" is filled with big stories about some of the littlest heroes. Accompanied by a photo, each child's tale is lovingly told by the parents who know the stories best. Combined with a helpful glossary of terms and a list of resources, the stories in "Matters of the Heart – Volume 1," are not only tales of what has been, but also tales of what can be. Yes, many of them hold sorrow, but all of them hold the promise of new things to come. Much like a broken heart which becomes stronger as it heals, the healing power of the stories shared within can only make us all stronger, as well.