End Of Life Care For Children And Adults With Intellectual And Developmental Disabilities

Author : Sandra L. Friedman
Publisher : American Association
ISBN 13 : 9781935304074
Total Pages : 0 pages
Book Rating : 4.70/5 ( download)

DOWNLOAD NOW!

Download or read book End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities written by Sandra L. Friedman and published by American Association. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.

Author : Roger J. Stancliffe
Publisher : Springer Nature
ISBN 13 : 3030986977
Total Pages : 542 pages
Book Rating : 4.71/5 ( download)

DOWNLOAD NOW!

Download or read book End of Life and People with Intellectual and Developmental Disability written by Roger J. Stancliffe and published by Springer Nature. This book was released on 2022-06-11 with total page 542 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

Author : I. Leslie Rubin
Publisher : Springer
ISBN 13 : 3319180967
Total Pages : 2307 pages
Book Rating : 4.60/5 ( download)

DOWNLOAD NOW!

Download or read book Health Care for People with Intellectual and Developmental Disabilities across the Lifespan written by I. Leslie Rubin and published by Springer. This book was released on 2016-04-25 with total page 2307 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.

Author : Ellen Braaten
Publisher : SAGE Publications
ISBN 13 : 1483392287
Total Pages : 1928 pages
Book Rating : 4.88/5 ( download)

DOWNLOAD NOW!

Download or read book The SAGE Encyclopedia of Intellectual and Developmental Disorders written by Ellen Braaten and published by SAGE Publications. This book was released on 2018-01-29 with total page 1928 pages. Available in PDF, EPUB and Kindle. Book excerpt: This encyclopedia provides an inter-disciplinary approach, discussing the sociocultural viewpoints, policy implications, educational applications and ethical issues involved in a wide range of disorders and interventions.

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309182662
Total Pages : 16 pages
Book Rating : 4.69/5 ( download)

DOWNLOAD NOW!

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-10-30 with total page 16 pages. Available in PDF, EPUB and Kindle. Book excerpt: This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Author : Betty Ferrell
Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.87/5 ( download)

DOWNLOAD NOW!

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Author : Briana S. Nelson Goff
Publisher : Routledge
ISBN 13 : 1317204514
Total Pages : 236 pages
Book Rating : 4.10/5 ( download)

DOWNLOAD NOW!

Download or read book Intellectual and Developmental Disabilities written by Briana S. Nelson Goff and published by Routledge. This book was released on 2017-10-19 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.76/5 ( download)

DOWNLOAD NOW!

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Author : Nancy Berlinger
Publisher :
ISBN 13 : 019997456X
Total Pages : 265 pages
Book Rating : 4.66/5 ( download)

DOWNLOAD NOW!

Download or read book The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life written by Nancy Berlinger and published by . This book was released on 2013-07-11 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: This major new work updates and significantly expands The Hastings Center's 1987 Guidelines on the Termination of Life-Sustaining Treatment and Care of the Dying. Like its predecessor, this second edition will shape the ethical and legal framework for decision-making on treatment and end-of-life care in the United States. This groundbreaking work incorporates 25 years of research and innovation in clinical care, law, and policy. It is written for physicians, nurses, and other health care professionals and is structured for easy reference in difficult clinical situations. It supports the work of clinical ethicists, ethics committee members, health lawyers, clinical educators, scholars, and policymakers. It includes extensive practical recommendations. Health care reform places a new set of challenges on decision-making and care near the end of life. The Hastings Center Guidelines are an essential resource.

Author : Sue Read
Publisher : Jessica Kingsley Publishers
ISBN 13 : 0857007262
Total Pages : 282 pages
Book Rating : 4.61/5 ( download)

DOWNLOAD NOW!

Download or read book Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement written by Sue Read and published by Jessica Kingsley Publishers. This book was released on 2014-08-21 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.