Patient The True Story Of A Rare Illness

Author : Ben Watt
Publisher : Open Road + Grove/Atlantic
ISBN 13 : 0802192033
Total Pages : 124 pages
Book Rating : 4.35/5 ( download)

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Download or read book Patient written by Ben Watt and published by Open Road + Grove/Atlantic. This book was released on 2014-10-15 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Notable Book of the Year: “Unforgettable . . . Few have told such a compelling life-story as skillfully” (San Francisco Chronicle). In the summer of 1992, on the eve of an American tour, singer/songwriter Ben Watt, one half of the Billboard-topping pop duo Everything But The Girl, was taken to a London hospital complaining of chest pain. As his condition worsened, doctors were baffled. He was eventually he was diagnosed with a rare life-threatening autoimmune disease called Churg-Strauss Syndrome. “To paraphrase Joseph Heller,” Ben says, “you know it’s something serious when they name it after two guys.” By the time he came home, two-and-half-months later, his ravaged body was forty-six pounds lighter, and he was missing most of his small intestine. “Unfold[ing] like a page-turning mystery” (The Los Angeles Times), and “told with great wit and without self-pity, Patient is a sobering look at how life can suddenly be transformed into a humbling vaudeville of tests, IV’s, catheters, and bedpans” (The New York Times Book Review). Injecting a frankness and natural humility into his “funny, frightening, and piercingly vulnerable” (Interview) chronicle of a medical nightmare, Ben writes about his childhood, reflects on family, and his shared life with band member and partner, Tracey Thorn. The result is “a vivid, finely wrought look at having one’s future yanked away, and surviving physically and emotionally” (Dallas Morning Star-Telegram). A Sunday Times Book of the Year A Village Voice Favorite Book of the Year An Esquire (UK) Best Non-Fiction Award Finalist

Author : Victoria Jackson
Publisher : Simon and Schuster
ISBN 13 : 0692928995
Total Pages : 272 pages
Book Rating : 4.98/5 ( download)

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Download or read book The Power of Rare written by Victoria Jackson and published by Simon and Schuster. This book was released on 2017-09-26 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.

Author : Emily Smucker
Publisher : Health Communications, Inc.
ISBN 13 : 0757314147
Total Pages : 170 pages
Book Rating : 4.48/5 ( download)

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Download or read book Emily written by Emily Smucker and published by Health Communications, Inc.. This book was released on 2009-08-03 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emily's the sick one . . . all of the time. Plagued with some sort of cold or fever or bizarre aches and pains for much of her life, Emily thought the dizziness and stomachaches at the start of her senior year were just another bout of "Emily flu." But when they didn't go away, she knew something was seriously wrong. Eventually diagnosed with the rare and incurable West Nile virus, Emily watched her senior year and the future she had planned for go up in smoke. "I want a normal life for a teenager. I want to ache from a long day at work. I want to be so busy that I don't have time to post on my blog. I want to run the race of life instead of being pushed along it in a wheelchair. I want to be on the ride of my life, you know?" Because Truth Is More Fascinating Than Fiction

Author : Susannah Cahalan
Publisher : Penguin UK
ISBN 13 : 0141975350
Total Pages : 288 pages
Book Rating : 4.51/5 ( download)

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Download or read book Brain On Fire: My Month of Madness written by Susannah Cahalan and published by Penguin UK. This book was released on 2012-11-13 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'My first serious blackout marked the line between sanity and insanity. Though I would have moments of lucidity over the coming days and weeks, I would never again be the same person ...' Susannah Cahalan was a happy, clever, healthy twenty-four-year old. Then one day she woke up in hospital, with no memory of what had happened or how she had got there. Within weeks, she would be transformed into someone unrecognizable, descending into a state of acute psychosis, undergoing rages and convulsions, hallucinating that her father had murdered his wife; that she could control time with her mind. Everything she had taken for granted about her life, and who she was, was wiped out. Brain on Fire is Susannah's story of her terrifying descent into madness and the desperate hunt for a diagnosis, as, after dozens of tests and scans, baffled doctors concluded she should be confined in a psychiatric ward. It is also the story of how one brilliant man, Syria-born Dr Najar, finally proved - using a simple pen and paper - that Susannah's psychotic behaviour was caused by a rare autoimmune disease attacking her brain. His diagnosis of this little-known condition, thought to have been the real cause of devil-possessions through history, saved her life, and possibly the lives of many others. Cahalan takes readers inside this newly-discovered disease through the progress of her own harrowing journey, piecing it together using memories, journals, hospital videos and records. Written with passionate honesty and intelligence, Brain on Fire is a searingly personal yet universal book, which asks what happens when your identity is suddenly destroyed, and how you get it back. 'With eagle-eye precision and brutal honesty, Susannah Cahalan turns her journalistic gaze on herself as she bravely looks back on one of the most harrowing and unimaginable experiences one could ever face: the loss of mind, body and self. Brain on Fire is a mesmerizing story' -Mira Bartók, New York Times bestselling author of The Memory Palace Susannah Cahalan is a reporter on the New York Post, and the recipient of the 2010 Silurian Award of Excellence in Journalism for Feature Writing. Her writing has also appeared in the New York Times, and is frequently picked up by the Daily Mail, Gawker, Gothamist, AOL and Yahoo among other news aggregrator sites.

Author : David Fajgenbaum
Publisher : Ballantine Books
ISBN 13 : 1524799629
Total Pages : 256 pages
Book Rating : 4.25/5 ( download)

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Download or read book Chasing My Cure written by David Fajgenbaum and published by Ballantine Books. This book was released on 2019-09-10 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: LOS ANGELES TIMES AND PUBLISHERS WEEKLY BESTSELLER • The powerful memoir of a young doctor and former college athlete diagnosed with a rare disease who spearheaded the search for a cure—and became a champion for a new approach to medical research. “A wonderful and moving chronicle of a doctor’s relentless pursuit, this book serves both patients and physicians in demystifying the science that lies behind medicine.”—Siddhartha Mukherjee, New York Times bestselling author of The Emperor of All Maladies and The Gene David Fajgenbaum, a former Georgetown quarterback, was nicknamed the Beast in medical school, where he was also known for his unmatched mental stamina. But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime. Miraculously, Fajgenbaum survived—only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself. More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide. Praise for Chasing My Cure “A page-turning chronicle of living, nearly dying, and discovering what it really means to be invincible in hope.”—Angela Duckworth, #1 New York Times bestselling author of Grit “[A] remarkable memoir . . . Fajgenbaum writes lucidly and movingly . . . Fajgenbaum’s stirring account of his illness will inspire readers.”—Publishers Weekly

Author : C.M. Lewis
Publisher : Dorrance Publishing
ISBN 13 : 1647024536
Total Pages : 112 pages
Book Rating : 4.36/5 ( download)

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Download or read book Living with Myasthenia Gravis written by C.M. Lewis and published by Dorrance Publishing. This book was released on 2020-08-24 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with Myasthenia Gravis: The Struggle Is Real: This Is My Story By: C.M. Lewis Being diagnosed with Myasthenia Gravis, or MG for short, C.M. Lewis shares this true story of her experience with this invisible rare non-contagious autoimmune disease. Having this illness takes considerable strength, as it tirelessly attacks her body, but C.M. Lewis proves that she is a warrior and is motivational for those who may be experiencing this illness as well.

Author : Rick Murdock
Publisher : Crown
ISBN 13 :
Total Pages : 328 pages
Book Rating : 4.05/5 ( download)

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Download or read book Patient Number One written by Rick Murdock and published by Crown. This book was released on 2000 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In Great Dames, Marie Benner introduces us to a pantheon of women whose lives are both gloriously individual and yet somehow universal. Her subjects range from Jacqueline Kennedy Onassis, who found happiness in her last decade, to Constance Baker Motley, who argued Brown versus the Board of Education before the United States Supreme Court, to Luise Rainer, who won two Academy Awards by age thirty, then fled Hollywood for good. We meet Kitty Carlisle Hart, a professional charmer and tireless advocate of the arts, and Diana Trilling, the intellectual's intellectual, who published her final, splendid memoir at age ninety-one. There are even the Becky Sharps, who maneuvered powerful men to help them ascend: Marietta Tree, Pamela Harriman, and Clare Boothe Luce. And the wonderfully flamboyant Kay Thompson, whose pint-sized creation, Eloise, gave her a place in American cultural history. Finally, there is Thelma Brenner, who was the first great dame her daughter ever knew." "These are women who helped shape a century. Marie Brenner's portraits are intimate, vivid, and true, and full of subtle but important lessons. The way the great dames lived their lives - their rules, their codes, their insistence on certain fundamentals - are models that today's women should consider as they ascend to positions of leadership in a new millennium."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved

Author : Amy Silverstein
Publisher : Open Road + Grove/Atlantic
ISBN 13 : 1555848761
Total Pages : 279 pages
Book Rating : 4.67/5 ( download)

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Download or read book Sick Girl written by Amy Silverstein and published by Open Road + Grove/Atlantic. This book was released on 2008-10-13 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: This shockingly frank and irreverent memoir of a young woman’s life with a heart transplant “will inspire and choke you up with tears and laughter” (Larry King). At twenty-four, Amy Silverstein was your typical type-A law student: smart, driven, and highly competitive. With a full course load and a budding romance, it seemed nothing could slow her down. Until her heart began to fail. With a grace and force reminiscent of Lucy Grealy’s Autobiography of a Face or Susanna Kaysen’s Girl, Interrupted, Amy chronicles her medical saga from the first misdiagnosis to her astonishing and ongoing recovery. Her memoir is made all the more dramatic by the deliriously romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. Distrustful of her doctors and insistent in her refusal to be the “grateful heart patient” she is expected to be, Amy presents a patient’s perspective that is truly eye-opening and even controversial. Amy’s shocking honesty and irreverent humor allow the reader to live her nightmare from the inside—an unforgettable experience that is both painfully disturbing and utterly compelling.

Author : Christine Montross
Publisher : Penguin
ISBN 13 : 0143125710
Total Pages : 257 pages
Book Rating : 4.16/5 ( download)

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Download or read book Falling Into the Fire written by Christine Montross and published by Penguin. This book was released on 2014-07-29 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Falling Into the Fire is psychiatrist Christine Montross’s thoughtful investigation of the gripping patient encounters that have challenged and deepened her practice. The majority of the patients Montross treats in Falling Into the Fire are seen in the locked inpatient wards of a psychiatric hospital; all are in moments of profound crisis. We meet a young woman who habitually commits self-injury, having ingested light bulbs, a box of nails, and a steak knife, among other objects. Her repeated visits to the hospital incite the frustration of the staff, leading Montross to examine how emotion can interfere with proper care. A recent college graduate, dressed in a tunic and declaring that love emanates from everything around him, is brought to the ER by his concerned girlfriend. Is it ecstasy or psychosis? What legal ability do doctors have to hospitalize—and sometimes medicate—a patient against his will? A new mother is admitted with incessant visions of harming her child. Is she psychotic and a danger or does she suffer from obsessive thoughts? Her course of treatment—and her child’s future—depends upon whether she receives the correct diagnosis. Each case study presents its own line of inquiry, leading Montross to seek relevant psychiatric knowledge from diverse sources. A doctor of uncommon curiosity and compassion, Montross discovers lessons in medieval dancing plagues, in leading forensic and neurological research, and in moments from her own life. Beautifully written, deeply felt, Falling Into the Fire brings us inside the doctor’s mind, illuminating the grave human costs of mental illness as well as the challenges of diagnosis and treatment. Throughout, Montross confronts the larger question of psychiatry: What is to be done when a patient’s experiences cannot be accounted for, or helped, by what contemporary medicine knows about the brain? When all else fails, Montross finds, what remains is the capacity to abide, to sit with the desperate in their darkest moments. At once rigorous and meditative, Falling Into the Fire is an intimate portrait of psychiatry, allowing the reader to witness the humanity of the practice and the enduring mysteries of the mind

Author : Shirleen Von Hoffmann
Publisher : Dog Ear Publishing
ISBN 13 : 1598580213
Total Pages : 245 pages
Book Rating : 4.11/5 ( download)

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Download or read book The Journey Home written by Shirleen Von Hoffmann and published by Dog Ear Publishing. This book was released on 2005-08 with total page 245 pages. Available in PDF, EPUB and Kindle. Book excerpt: