The Invisible Patient The Emotional Financial And Physical Toll On Family Caregivers

Author : Annalee Kruger
Publisher :
ISBN 13 :
Total Pages : 255 pages
Book Rating : 4.85/5 ( download)

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Download or read book The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers written by Annalee Kruger and published by . This book was released on 2021-08-27 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309448093
Total Pages : 367 pages
Book Rating : 4.93/5 ( download)

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Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Author : Carroll Golden
Publisher : C.Golden Consulting, LLC
ISBN 13 : 1647046424
Total Pages : 178 pages
Book Rating : 4.22/5 ( download)

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Download or read book How Not To Pull Your Family Apart written by Carroll Golden and published by C.Golden Consulting, LLC. This book was released on 2023-06-22 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Carroll weaves her vast experience in long term care insurance and personal insights into the MUST-READ book! It is jam-packed with helpful information families and professionals need to know in order to make informed decisions about aging planning." —Annalee Kruger, President of Care Right Inc., and author of The Invisible Patient: The Emotional, Financial, and Physical Toll on Family Caregivers Who’s going to be the physical, emotional, and financial caregiver in your family (no matter how you define family)? Few of us understand or are prepared for the breadth of lifestyle implications that come with that role. On the flip side, what if it’s you that needs care? Meet the Jones family, a multigenerational example of how it all works in the real world. Follow Jodi and her family as they suddenly must deal with her parent’s extended care needs. Tension, guilt, and a lack of information start to impact Jodi’s health, happiness, job and family, relationships. Follow along as this multigenerational family uses my three-step process to create a Care Guide, a Care Squad, and a Care Planning Team. Learn how to establish a framework to start and continue conversations, minimize tension, and gain an overview of several planning options to fit almost any budget so you’re ready for tomorrow.

Author : Nancy J. Day
Publisher : Fulton Books, Inc.
ISBN 13 :
Total Pages : 199 pages
Book Rating : 4.72/5 ( download)

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Download or read book Mom Has Alzheimer's written by Nancy J. Day and published by Fulton Books, Inc.. This book was released on 2023-11-20 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a story about my mom's journey with Alzheimer's and my role as a caregiver. Although I graduated from nursing school and became a nurse practitioner, nothing prepared me for this role! We had many challenges and struggles along the way. Not just my mom, but also me! I have written the story but also have added special sections for caregivers to learn along the way. It offers tips on providing care for various issues such as behavior issues, sleeping issues, eating problems, depression, taking care of bed-bound parents, etc., and also taking care of yourself while caregiving. Caregiving is very hard work! Women who care for Alzheimer's patients are at an increased risk for developing Alzheimer's themselves. Two-thirds of Alzheimer's patients are women! If a wife's husband gets Alzheimer's and she takes care of him, she is at a six times greater risk to develop Alzheimer's herself. I have also included resources for caregivers to find help.

Author : Lucy Bregman
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0313351740
Total Pages : 813 pages
Book Rating : 4.47/5 ( download)

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Download or read book Religion, Death, and Dying written by Lucy Bregman and published by Bloomsbury Publishing USA. This book was released on 2009-11-25 with total page 813 pages. Available in PDF, EPUB and Kindle. Book excerpt: A wide-ranging anthology for general readers covering many religious, ethical, and spiritual aspects of death, dying, and bereavement in American society. What do various spiritual and ethical belief systems have to say about modern medicine's approach to the end of life? Do all major religions characterize the afterlife in similar ways? How do funeral rites and rituals vary across different faiths? Now there is one resource that gathers leading scholars to address these questions and more about the many religious, ethical, and spiritual aspects of death, dying, and bereavement in America. Religion, Death, and Dying compares and contrasts the ways different faiths and ethical schools contemplate the end of life. The work is organized into three thematic volumes: first, an examination of the contemporary medicalized death from the perspective of different religious traditions and the professions involved; second, an exploration of complex, often controversial issues, including the death of children, AIDS, capital punishment, and war; and finally, a survey of the funeral and bereavement rituals that have evolved under various religions.

Author : Anne Martin-Matthews
Publisher : Psychology Press
ISBN 13 : 1136874445
Total Pages : 312 pages
Book Rating : 4.44/5 ( download)

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Download or read book Aging and Caring at the Intersection of Work and Home Life written by Anne Martin-Matthews and published by Psychology Press. This book was released on 2010-10-18 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are not many books that address the boundaries of care of older people from a work-life perspective. This book, authored by contributors from various countries, looks at the boundaries of care by looking at private and public help, professional and personal help and paid and unpaid caregivers. It captures and conceptualizes the complexity of the intersection of work and home life as it relates to the provision of assistance and support to older relatives in a variety of "care work" contexts. It explores these issues within a critical framework, rather than from an assumed stress or burden perspective, which dominates current texts on the topic. Readers of this volume will gain a deeper understanding of issues of care provision amongst "networks" of careers and helpers, and of the particular dynamics of care when it is episodic or framed by constrains of space and time as a result of geography. In addition, each chapter addresses issues of diversity with sensitivity to gender, race and ethnicity. This book will be of use to academics and graduate students in Gerontology, Family Studies, IO psychology, Gender Studies and Sociology.

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461431549
Total Pages : 332 pages
Book Rating : 4.41/5 ( download)

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Download or read book Cancer Caregiving in the United States written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2012-04-24 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Despite advances in detection and treatment, cancer remains a source of pain and distress to patients and of complex challenges to the loved ones caring for them. The trend toward shorter hospital stays in particular has increased the physical, psychological, and financial burden on caregivers, often leading to adverse effects on patients. Cancer Caregiving in the United States illuminates these complex concerns with authoritative detail. This wide-ranging volume provides a comprehensive survey of cancer-related issues, including those affecting the care triad (patients-family members- professionals) and quality of care as well as the numerous physical, emotional, and financial challenges that caregivers may need to confront. Sources of caregiver difficulty at each stage of the disease, from diagnosis to end of life, are explored. Each chapter analyzes its topic in terms of practice, research, education, and policy, providing a wealth of literature reviews, assessment and care models, interventions, and recommendations for future study and practice. Coverage includes: Caregiving issues for cancer patients with long-term, short-term, and intermittent needs. Family caregivers as members of the treatment team. The impact of health disparities on caregivers. Cancer care policy and advocacy. End-of-life issues for cancer caregivers. Legal, financial, and ethical issues. Cancer Caregiving in the United States is a core reference for researchers, professionals/scientist-practitioners, and graduate students in such caregiving fields as clinical psychology, social work, nursing, public health and medicine, social policy, and educational policy.

Author : John G. Bruhn
Publisher : Springer
ISBN 13 : 3319298038
Total Pages : 54 pages
Book Rating : 4.30/5 ( download)

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Download or read book After Diagnosis: Family Caregiving with Hospice Patients written by John G. Bruhn and published by Springer. This book was released on 2016-02-19 with total page 54 pages. Available in PDF, EPUB and Kindle. Book excerpt: This brief provides approaches to help family caregivers understand the role of caregiving, its challenges and consequences. Using real life case examples, it illustrates the essentials of family caregiving. The caregiving role can be a source of caregiver stress and can become increasingly burdensome. People are now living longer and acquiring chronic diseases, which makes it necessary to involve caregivers to assist in disability care for longer periods of time, and live out their end-time at home, which means caregivers are more and more needed, especially at the end-of-life. This brief illustrates the role and scope of caregiving and its future growth. It is useful to physicians, social workers, sociologists, psychologists, nurses, public health, public policy and families and has a broad appeal for use in courses on Death and Dying.

Author : Dustin Garth James M.D.
Publisher : Penguin
ISBN 13 : 1101443111
Total Pages : 403 pages
Book Rating : 4.18/5 ( download)

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Download or read book The Complete Idiot's Guide to Digestive Health written by Dustin Garth James M.D. and published by Penguin. This book was released on 2010-09-07 with total page 403 pages. Available in PDF, EPUB and Kindle. Book excerpt: Start to digest easily with some food for thought . . . Providing relief for a growing problem in America, The Complete Idiot's Guide® to Digestive Health covers the digestive issues affecting over 95 million people. It is a powerful combination of medical, dietary, and natural therapy to help sufferers and prevent their disorders from recurring. • Provides an overview of symptoms and tests to help diagnose conditions • Covers a variety of disorders including ulcers, IBS, reflux, celiac disease, gastritis, Crohn's disease, colitis, and chronic diarrhea • A full range of medical treatments • Dietary and natural protocols to help relieve conditions

Author : Kate Washington
Publisher : Beacon Press
ISBN 13 : 0807011509
Total Pages : 226 pages
Book Rating : 4.08/5 ( download)

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Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.