Quality Of Life Measurement In Neurodegenerative And Related Conditions

Author : Crispin Jenkinson
Publisher : Cambridge University Press
ISBN 13 : 1139491342
Total Pages : 207 pages
Book Rating : 4.41/5 ( download)

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Download or read book Quality of Life Measurement in Neurodegenerative and Related Conditions written by Crispin Jenkinson and published by Cambridge University Press. This book was released on 2011-02-03 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.

Author : Charles Richard Boddington Joyce
Publisher : Taylor & Francis
ISBN 13 : 9789057024252
Total Pages : 258 pages
Book Rating : 4.5X/5 ( download)

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Download or read book Individual Quality of Life written by Charles Richard Boddington Joyce and published by Taylor & Francis. This book was released on 1999 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy & health economics. The importance of individual quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables. It is a fundamental belief of the editors of this book that the primary focus of quality of life is & must continue to be the individual, who alone can define it & assess its changing personal significances. The individual perspective is of vital importance not only to patients but to their doctors too, & is more & more frequently proposed as the most meaningful measure of outcome in clinical research, especially in non-remitting or chronic conditions. Workers who wish to consider wider aspects of influences on the illnesses suffered by individuals & the health care that they receive will find much to stimulate them in the methods of documentation proposed in this book. Those mainly concerned with population samples rather than individuals may also find the sensitive methods of investigation proposed here not only to be applicable to their own areas of interest, but also rewarding in perhaps unexpected ways.

Author : Crispin Jenkinson
Publisher : CRC Press
ISBN 13 : 1315348306
Total Pages : 224 pages
Book Rating : 4.08/5 ( download)

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Download or read book Health Status Measurement in Neurological Disorders written by Crispin Jenkinson and published by CRC Press. This book was released on 2020-01-31 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The use of home detoxification enables health care workers to avoid episodes of in-patient care, with its inherent high costs and secondary problems of label attachment and possible stigmatization. Patients, their carers (professional, voluntary and domestic), families and friends all involved in this 'at-home' process, thereby leading to empowerment and increased compliance. This book provides practical advice and guidance. If all the procedures here are followed, the care worker of whatever discipline is unlikely to encounter major difficulties. Alcohol Home Detoxification and Assessment provides the kind of model increasingly required for the move towards community care of people with a whole range of conditions, and will enable professionals to organize the process with confidence.

Author : Joyce
Publisher : Psychology Press
ISBN 13 : 1135852162
Total Pages : 247 pages
Book Rating : 4.60/5 ( download)

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Download or read book Individual Quality of Life written by Joyce and published by Psychology Press. This book was released on 2013-01-11 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy and health economics. The importance of "individual" quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables. The editors of this book believe that the primary focus of quality of life is and must continue to be the individual, who alone can define it and assess its changing personal significance. The challenge of presenting this belief

Author : Pablo Martinez-Martin
Publisher : Springer
ISBN 13 : 1907673881
Total Pages : 96 pages
Book Rating : 4.87/5 ( download)

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Download or read book Guide to Assessment Scales in Parkinson’s Disease written by Pablo Martinez-Martin and published by Springer. This book was released on 2014-10-16 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Guide assesses the key clinimetric attributes in the assessment of Parkinson's Disease (PD), with the intention to offer rapid and pragmatic information on the most relevant scales used in PD. Parkinson’s disease affects approximately 4 million people globally and is most commonly seen in people over the age of 50. The disease is a progressive disorder of the nervous system, and presents a number of movement and cognitive symptoms, thereby greatly affecting a patients quality of life. The use of scales for assessment in neurological disorders such as PD arises from the need to quantify disorders and states (such constructs as disability, symptoms, quality of life). Assessment scales are often categorised into two categories: generic (i.e. those scales usable in any health condition), and specific (i.e. scales developed for exclusive use in PD). They can have a variety of components: single-item and multi-item or composite scale; unidimensional and multidimensional; and as disease-centered and patient-centered measures. The creation and validation of scales is complex, with scales undergoing numerous studies to assess criteria such as acceptability, reliability, and responsiveness. In the process of validation of a scale the following attributes should be tested to ascertain whether a scale is an effective instrument of measurement.

Author : Matthew Rizzo
Publisher : John Wiley & Sons
ISBN 13 : 111877177X
Total Pages : 807 pages
Book Rating : 4.78/5 ( download)

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Download or read book The Wiley Handbook on the Aging Mind and Brain written by Matthew Rizzo and published by John Wiley & Sons. This book was released on 2018-05-29 with total page 807 pages. Available in PDF, EPUB and Kindle. Book excerpt: A thought-provoking treatise on understanding and treating the aging mind and brain This handbook recognizes the critical issues surrounding mind and brain health by tackling overarching and pragmatic needs so as to better understand these multifaceted issues. This includes summarizing and synthesizing critical evidence, approaches, and strategies from multidisciplinary research—all of which have advanced our understanding of the neural substrates of attention, perception, memory, language, decision-making, motor behavior, social cognition, emotion, and other mental functions. Written by a plethora of health experts from around the world, The Wiley Handbook on the Aging Mind and Brain offers in-depth contributions in 7 sections: Introduction; Methods of Assessment; Brain Functions and Behavior across the Lifespan; Cognition, Behavior and Disease; Optimizing Brain Function in Health and Disease; Forensics, Competence, Legal, Ethics and Policy Issues; and Conclusion and New Directions. Geared toward improving the recognition, diagnosis, and treatment of many brain-based disorders that occur in older adults and that cause disability and death Seeks to advance the care of patients who have perceptual, cognitive, language, memory, emotional, and many other behavioral symptoms associated with these disorders Addresses principles and practice relevant to challenges posed by the US National Academy of Sciences and National Institute of Aging (NIA) Presents materials at a scientific level that is appropriate for a wide variety of providers The Wiley Handbook on the Aging Mind and Brain is an important text for neurologists, psychiatrists, psychologists, physiatrists, geriatricians, nurses, pharmacists, social workers, and other primary caregivers who care for patients in routine and specialty practices as well as students, interns, residents, and fellows.

Author : Francesco Pagnini
Publisher : Oxford University Press
ISBN 13 : 0191075132
Total Pages : 300 pages
Book Rating : 4.31/5 ( download)

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Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018-02-09 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

Author : Sandra Schüssler
Publisher : Springer
ISBN 13 : 3319498320
Total Pages : 248 pages
Book Rating : 4.24/5 ( download)

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Download or read book Dementia in Nursing Homes written by Sandra Schüssler and published by Springer. This book was released on 2017-05-19 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by leading international experts, this book discusses the latest advances in the field of dementia in nursing homes. The topics and findings covered are based on their survey and on a scientific literature review. Dementia is spreading worldwide, placing a growing burden on healthcare systems and caregivers, as well as those affected. With increasing and complex care needs, nursing home admission is often necessary. Globally, over half of nursing home residents suffer from dementia. The book provides essential information on the most important issues in dementia in nursing homes today, including meaningful activities, patient-/person-centered care, psychosocial interventions, challenging behavior, inclusion and support of family members, pain, staff training and education, communication, polypharmacy, quality of life, end-of-life care and advanced care planning, depression, delirium, multidisciplinary approaches, physical restraints and care dependency. Each topic is covered by an international expert in dementia. As such, the book will appeal to professional nurses, nursing scientists, nursing students, other healthcare professionals, and to a broad readership, and will provide a valuable resource for those working in nursing homes, as well as researchers in the field.

Author : David Morley
Publisher : CRC Press
ISBN 13 : 131534968X
Total Pages : 277 pages
Book Rating : 4.88/5 ( download)

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Download or read book Children and Young People’s Response to Parental Illness written by David Morley and published by CRC Press. This book was released on 2016-09-15 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: Assessment of the impact of parental illness has gathered significant momentum over recent years. This book provides an up-to-date guide, for a variety of professionals, on how a range of conditions might impact upon children and young people. Each chapter provides an overview of current literature, an evaluation of relevant interventions, an ‘in practice’ section that provides guidance for readers in terms of best practice, and future research directions. Although the primary focus of the book is directed at children’s and young people’s response to their parent’s condition, the challenges of parenting are also frequently highlighted. Additionally, the text provides an overview of measurement issues when investigating children’s and young people’s response to parental illness.

Author : Jeffrey L. Cummings
Publisher : Oxford University Press
ISBN 13 : 0190233567
Total Pages : 361 pages
Book Rating : 4.63/5 ( download)

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Download or read book Neurodegenerative Diseases written by Jeffrey L. Cummings and published by Oxford University Press. This book was released on 2016-11-14 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Neurodegenerative Diseases' is the result of a conceptual revolution over the last decade in our understanding of neurodegenerative diseases as sharing unifying features. There is an increasing appreciation of the common biological and pathological features across seemingly varied neurodegenerative diseases that entail protein misfolding dysfunction and its consequences over time. Providing an overview of this conceptual change is the main theme for this work.