More Than A Diagnosis Stories Of Hurdles Hope And Possibility From Parents Of Children Who Are Differently Abled

Author : Jessica Burdg
Publisher :
ISBN 13 : 9781544515076
Total Pages : pages
Book Rating : 4.73/5 ( download)

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Download or read book More Than a Diagnosis written by Jessica Burdg and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: ""What do you want the world to know about your child?"" ""What is raising a child who is differently-abled like for you, as a parent?"" These are two of the many questions Jessica Burdg asked the families you'll meet in More Than a Diagnosis, a compilation of sixteen poignant profiles from her ongoing blog series, ""Stories of Hope."" Here, pare.

Author : Jessica Burdg Burdg
Publisher :
ISBN 13 : 9781544515090
Total Pages : 172 pages
Book Rating : 4.9X/5 ( download)

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Download or read book More Than a Diagnosis: Stories of Hurdles, Hope, and Possibility from Parents of Children Who Are Differently-Abled written by Jessica Burdg Burdg and published by . This book was released on 2020-08-11 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Author : Megan Crowley-Matoka
Publisher : Duke University Press
ISBN 13 : 0822374633
Total Pages : 352 pages
Book Rating : 4.33/5 ( download)

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Download or read book Domesticating Organ Transplant written by Megan Crowley-Matoka and published by Duke University Press. This book was released on 2016-03-25 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Organ transplant in Mexico is overwhelmingly a family matter, utterly dependent on kidneys from living relatives—not from stranger donors typical elsewhere. Yet Mexican transplant is also a public affair that is proudly performed primarily in state-run hospitals. In Domesticating Organ Transplant, Megan Crowley-Matoka examines the intimate dynamics and complex politics of kidney transplant, drawing on extensive fieldwork with patients, families, medical professionals, and government and religious leaders in Guadalajara. Weaving together haunting stories and sometimes surprising statistics culled from hundreds of transplant cases, she offers nuanced insight into the way iconic notions about mothers, miracles, and mestizos shape how some lives are saved and others are risked through transplantation. Crowley-Matoka argues that as familial donors render transplant culturally familiar, this fraught form of medicine is deeply enabled in Mexico by its domestication as both private matter of home and proud product of the nation. Analyzing the everyday effects of transplant’s own iconic power as an intervention that exemplifies medicine’s death-defying promise and commodifying perils, Crowley-Matoka illuminates how embodied experience, clinical practice, and national identity produce one another.

Author : Della L. Howell
Publisher : Praeger
ISBN 13 : 0275996018
Total Pages : 0 pages
Book Rating : 4.17/5 ( download)

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Download or read book My Child Has Cancer written by Della L. Howell and published by Praeger. This book was released on 2008-03-30 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: They are four words that can terrify any parent to the core: Your child has cancer. Each year more than 13,000 children and teenagers are diagnosed with cancer in the United States. The shock and demands of that diagnosis can be overwhelming for the parents, children, family, and friends as they face the emotions, along with the need to understand what the diagnosis means as well as what treatments are available and which are right for them. Parents, family members, friends, and professionals in healthcare will find support in this book. Written by a specialist in Pediatric Oncology, who is herself a cancer survivor as well as the mother of three young children, this book is clearly-stated and offers comprehensive information about the cancers that strike our youngest. They are four words that can terrify any parent to the core: Your child has cancer. Each year, more than 13,000 children and teenagers in the United States are diagnosed with cancer. The shock and demands of that diagnosis can be overwhelming for the parents, children, family members, and friends, as they face the emotions along with the need to understand what the diagnosis means, what treatments are available and which are right for them. In this book, there is support for all. Written by a specialist in Pediatric Oncology who is herself a cancer patient as well as the mother of three young children, this guide offers clearly stated and comprehensive information about the cancers that strike our youngest. Dr. Howell explains the 12 types of childhood cancer, with leukemias and tumors of the brain and nervous system most common. She tells us what the overall prognosis is, and how cancers affect children differently than they do adults, as well as what little is known about the causes, and she details the controversies on that subject. Howell explains common procedures and tests before, during, and after therapy, as well as the potential side effects. This compassionate physician does not ignore the vitally important issues of emotion—how to find the calm and strength to help the child or teen and be his or her best advocate, how to tell the child the diagnosis, what questions to anticipate, and how to deal with other family members and friends.

Author : Julie A. Stamm
Publisher :
ISBN 13 : 9780578650005
Total Pages : 28 pages
Book Rating : 4.02/5 ( download)

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Download or read book Some Days We... written by Julie A. Stamm and published by . This book was released on 2020-02-26 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: Follow Wyatt and his Mom, Anne, as they navigate through the unpredictable obstacles of a chronic illness. With love and imagination, they can overcome anything.

Author :
Publisher :
ISBN 13 :
Total Pages : 190 pages
Book Rating : 4./5 ( download)

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Download or read book Working Mother written by and published by . This book was released on 2003-10 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: The magazine that helps career moms balance their personal and professional lives.

Author : Kate Chopin
Publisher : Harper Collins
ISBN 13 : 1443435198
Total Pages : 25 pages
Book Rating : 4.92/5 ( download)

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Download or read book The Story Of An Hour written by Kate Chopin and published by Harper Collins. This book was released on 2014-04-22 with total page 25 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mrs. Louise Mallard, afflicted with a heart condition, reflects on the death of her husband from the safety of her locked room. Originally published in Vogue magazine, “The Story of an Hour” was retitled as “The Dream of an Hour,” when it was published amid much controversy under its new title a year later in St. Louis Life. “The Story of an Hour” was adapted to film in The Joy That Kills by director Tina Rathbone, which was part of a PBS anthology called American Playhouse. HarperPerennial Classics brings great works of literature to life in digital format, upholding the highest standards in ebook production and celebrating reading in all its forms. Look for more titles in the HarperPerennial Classics collection to build your digital library.

Author : Ann F. Schrooten
Publisher :
ISBN 13 : 9783030680220
Total Pages : 0 pages
Book Rating : 4.23/5 ( download)

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Download or read book Shared Struggles written by Ann F. Schrooten and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust. Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat. The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion. In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families. .

Author :
Publisher :
ISBN 13 :
Total Pages : 366 pages
Book Rating : 4.12/5 ( download)

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Download or read book Early Childhood Report written by and published by . This book was released on 1999 with total page 366 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309439124
Total Pages : 171 pages
Book Rating : 4.21/5 ( download)

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Download or read book Ending Discrimination Against People with Mental and Substance Use Disorders written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-09-03 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: Estimates indicate that as many as 1 in 4 Americans will experience a mental health problem or will misuse alcohol or drugs in their lifetimes. These disorders are among the most highly stigmatized health conditions in the United States, and they remain barriers to full participation in society in areas as basic as education, housing, and employment. Improving the lives of people with mental health and substance abuse disorders has been a priority in the United States for more than 50 years. The Community Mental Health Act of 1963 is considered a major turning point in America's efforts to improve behavioral healthcare. It ushered in an era of optimism and hope and laid the groundwork for the consumer movement and new models of recovery. The consumer movement gave voice to people with mental and substance use disorders and brought their perspectives and experience into national discussions about mental health. However over the same 50-year period, positive change in American public attitudes and beliefs about mental and substance use disorders has lagged behind these advances. Stigma is a complex social phenomenon based on a relationship between an attribute and a stereotype that assigns undesirable labels, qualities, and behaviors to a person with that attribute. Labeled individuals are then socially devalued, which leads to inequality and discrimination. This report contributes to national efforts to understand and change attitudes, beliefs and behaviors that can lead to stigma and discrimination. Changing stigma in a lasting way will require coordinated efforts, which are based on the best possible evidence, supported at the national level with multiyear funding, and planned and implemented by an effective coalition of representative stakeholders. Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change explores stigma and discrimination faced by individuals with mental or substance use disorders and recommends effective strategies for reducing stigma and encouraging people to seek treatment and other supportive services. It offers a set of conclusions and recommendations about successful stigma change strategies and the research needed to inform and evaluate these efforts in the United States.