Living With Illness Jaspers Story Living With Cystic Fibrosis

Author : Andy Glynne
Publisher : Franklin Watts
ISBN 13 : 9781445156040
Total Pages : 0 pages
Book Rating : 4.40/5 ( download)

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Download or read book Living with Illness: Jasper's Story - Living with Cystic Fibrosis written by Andy Glynne and published by Franklin Watts. This book was released on 2017-08-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this powerful story, told in his own words, Jasper explains what it means to grow up with cystiuc fibrosis. Read about what cystic fibrosis is, the treatment he receives and how it affects his daily life.

Author : LaRecea Tabor Gibbs
Publisher : Tate Publishing
ISBN 13 : 1616639350
Total Pages : 282 pages
Book Rating : 4.58/5 ( download)

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Download or read book Not a Wasted Breath written by LaRecea Tabor Gibbs and published by Tate Publishing. This book was released on 2010-12-14 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Sis, the worst thing CF [cystic fibrosis] can do is kill me. It can't stop me from living.' Todd Gibbs spoke those words once to his sister and he proved that statement true time and time again. Though cystic fibrosis did kill him five days after his thirty-first birthday, the living he did showed that he had won the battle, even if CF eventually won the war. Not a Wasted Breath is not just a story about living with a fatal disease or waiting for a transplant. That was only a part of Todd's life. He never allowed his illness to rule his life, even in the face of over eighty hospitalizations. This is truly a story about how others perceived Todd, how they were affected by his presence in their lives, and how Todd viewed himself and his existence. In a poignant compilation of thoughts, memories, articles, and journal entries, LaRecea Gibbs, Todd's mother, creates a touching tableau of a life well spent that will inspire anyone to overcome personal obstacles through faith, determination, courage, and most of all, humor. Join mother and author LaRecea Gibbs in an inspiring biography which shows that though Todd's life was short, he never wasted a single breath. This Book is an inspiration to all readers in appreciating the gift of life. The account is thorough, has depth of development, is authentic, and puts us inside the people involved. Not a Wasted Breath enables readers to travel along emotionally. As a result, we count our own blessings. John Hagaman, Professor of English, Western Kentucky University, Director of WKU Writing Project.

Author : Isabel Stenzel Byrnes
Publisher : University of Missouri Press
ISBN 13 : 0826273424
Total Pages : 361 pages
Book Rating : 4.20/5 ( download)

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Download or read book The Power of Two written by Isabel Stenzel Byrnes and published by University of Missouri Press. This book was released on 2014-10-14 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

Author : Tom Valenta
Publisher : Michelle Anderson Publishing
ISBN 13 : 9780855724078
Total Pages : 207 pages
Book Rating : 4.72/5 ( download)

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Download or read book Every Precious Breath written by Tom Valenta and published by Michelle Anderson Publishing. This book was released on 2012-07-01 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tom Valenta tells the story of his two grandsons and discovers that people living with cystic fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational.

Author : Jerry E. Hendon
Publisher : iUniverse
ISBN 13 : 1491778385
Total Pages : 406 pages
Book Rating : 4.88/5 ( download)

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Download or read book It’s Been a Good Life, Dad written by Jerry E. Hendon and published by iUniverse. This book was released on 2016-01-07 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: It’s Been a Good Life, Dad!—My Son’s Struggle with Cystic Fibrosis portrays a young man—Kevin Hendon—who lived his eighteen years with cystic fibrosis ever present. The author, Jerry E. Hendon, tells the story of his son’s life in the first part of this biography. He presents the disease’s harsh truths and the severe limits—and of medicine’s ability to respond to the disease’s challenges. With equal clarity, though, he reveals the energy and determination his son showed in the face of his diagnosis. In the second part of It’s Been a Good Life, Dad!, Kevin’s poetry takes center stage. He shares his feelings of isolation and frustration. He ruminates on love, lust, and romance. He expresses his observations about friends and school. He reflects on the place of religion and family in his life. The final two sections of the book sample the recollections of people who knew Kevin and share the abiding influences of Kevin’s spirit in the wider community of those his life has touched. Whether you have cystic fibrosis or know someone who lives with this disease, you might find yourself turning the pages of this portrayal and feeling the temptation to echo the author’s despair when he said, “What a miserable life!” But in the face of this disease and in response to such tugs to give in to despair, Kevin’s responds, “Oh, no. It’s been a good life .... It’s been a good life.”

Author : William Mahaney
Publisher :
ISBN 13 : 9781470136574
Total Pages : 228 pages
Book Rating : 4.70/5 ( download)

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Download or read book The Fight of My Life written by William Mahaney and published by . This book was released on 2012-08-10 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Born with cystic fibrosis, I am no stranger to hospitals, physical exams, PFT's and various other procedures that determined the illness I have and the extend of its' impact on my life. I kept many of my hospital reports, the various test results and procedures I have had throughout the years, including notes I had written and thoughts about these experiences. During the thirty days I was in Cleveland Clinic for my double lung transplant surgery and recovery my wife started a blog informing friends and relatives on my triumphs and setbacks. After my recovery I visited the nurses and respiratory therapists at Women and Children's Hospital of Buffalo, NY. One of the nurse's suggested I write a book on my experiences which I readily dismissed, but...that suggestion got me thinking, and over the course of several months I began to believe writing a book wasn't such a crazy idea. I reflected on the times in my life I could have used a base of reference to more easily comprehend and understand what I have been going through all these years. During my "tune-ups" I often wondered what was going through the mind of the CF patient in the room next to mine on the10th floor of the Women and Children's Hospital of Buffalo. Did they have the same issues, problems and fears that I had? How were they dealing with their disease? What were their concerns? Were they sicker or healthier than I was? So, here it is, on paper, my experience living with cystic fibrosis. It's not an extensive day by day diary of my life but it tells a pretty complete story. I know my experiences with this disease differ from other CF'ers, and however unique we all are, there is, still, many similarities and I know those with CF who read this will be able to relate to my story as if it was their own.

Author : Debbie Pitts
Publisher : Author House
ISBN 13 : 1452033463
Total Pages : 202 pages
Book Rating : 4.64/5 ( download)

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Download or read book Living on Borrowed Time written by Debbie Pitts and published by Author House. This book was released on 2007-01-19 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.

Author : Benjamin Easterday
Publisher : Lulu.com
ISBN 13 : 1387717227
Total Pages : 148 pages
Book Rating : 4.24/5 ( download)

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Download or read book Always Another Mountain, Living With Cystic Fibrosis written by Benjamin Easterday and published by Lulu.com. This book was released on 2018-04-05 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Always Another Mountain is the whimsical life story of David Foster, an adventurer, an outdoors man, and a man afflicted with the debilitating lung disorder Cystic Fibrosis. This book is adapted from the screenplay and draws the reader in through film styled scene descriptions. The story is an inspirational love story with many notes of humor that will leave you the reader with a full range of emotions. David had a passion for life and a love of the outdoors which transcended the physical limitations brought on by this incurable disease. Foster wanted to leave this world better than he found it, and wanted his life to serve as an inspiration not only for those suffering from CF, but for all of us. This is a story that touches on triumphs and tragedies that all those afflicted with cystic fibrosis must face during their shortened lives, and specifically David FosterÕs life. ""I'm just like anyone else, I just cough a little more"" -DavidFoster

Author : Susan Heinrichs Gray
Publisher :
ISBN 13 : 9781567661057
Total Pages : 40 pages
Book Rating : 4.5X/5 ( download)

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Download or read book Living with Cystic Fibrosis written by Susan Heinrichs Gray and published by . This book was released on 2003 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.

Author : Andy C. Lipman
Publisher : Booklogix
ISBN 13 : 9781665304023
Total Pages : 0 pages
Book Rating : 4.22/5 ( download)

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Download or read book The CF Warrior Project Volume 2 written by Andy C. Lipman and published by Booklogix. This book was released on 2023-02-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is a first-of-its-kind, inspirational book that details the lives of both people who live with the life-changing diagnosis of cystic fibrosis along with those who have made a difference in the CF community by advocating for those who fight the disease. Andy Lipman, the author and a CF warrior himself, created this series of memoirs in memory of someone who advocated for him-his mother, Eva-who inspired people inside and outside the CF community to fight for their dreams. Stories include people who once lived with a childhood disease now living into their fifties, sixties, and seventies thanks in large part to various scientific breakthroughs; parents who have turned unfathomable circumstances into impactful legacies in honor and, in some cases, in memory of their children; and celebrities who have used their influence to bring awareness to a disease and hope to a community that is so passionate to cure it. If you are looking for an inspirational series of stories of people who are making every breath count, The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is the book for you.