Invisible Caregivers

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Author :
Publisher : Columbia University Press
ISBN 13 : 0231119372
Total Pages : 335 pages
Book Rating : 4.75/5 ( download)

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Book Synopsis Invisible Caregivers by : Daphne Joslin

Download or read book Invisible Caregivers written by Daphne Joslin and published by Columbia University Press. This book was released on 2002 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection covers a variety of issues facing elder caregivers: community health, aging, HIV services, child welfare, education, public policy, and mental health.

The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers

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Publisher :
ISBN 13 :
Total Pages : 255 pages
Book Rating : 4.85/5 ( download)

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Book Synopsis The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers by : Annalee Kruger

Download or read book The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers written by Annalee Kruger and published by . This book was released on 2021-08-27 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.

Already Toast

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Publisher : Beacon Press
ISBN 13 : 0807011509
Total Pages : 226 pages
Book Rating : 4.08/5 ( download)

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Book Synopsis Already Toast by : Kate Washington

Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Invisible Caregivers

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Author :
Publisher : Columbia University Press
ISBN 13 : 0231504586
Total Pages : 335 pages
Book Rating : 4.84/5 ( download)

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Book Synopsis Invisible Caregivers by : Daphne Joslin

Download or read book Invisible Caregivers written by Daphne Joslin and published by Columbia University Press. This book was released on 2002-02-28 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families. Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.

Caring for the Family Caregiver

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Publisher : Oxford University Press
ISBN 13 : 0190055251
Total Pages : 256 pages
Book Rating : 4.57/5 ( download)

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Book Synopsis Caring for the Family Caregiver by : Elaine Wittenberg

Download or read book Caring for the Family Caregiver written by Elaine Wittenberg and published by Oxford University Press. This book was released on 2020-09-01 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for the Family Caregiver examines the high cost and poorly addressed exigencies of the family caregiver in chronic illness, including health literacy, palliative care, and health outcomes, through the prism of communication. This book uses an interdisciplinary approach to identify the impact of communication and its burdens on the caregiver and presents four caregiver profiles: the Manager, Carrier, Partner, and Lone caregiver, each emerging from a family system with different patterns of conversational sharing and expectations of conformity. By synthesizing current data assessing the experiences of caregivers, as well as integrating the narrative experiences of a range of caregivers living through a variety of illnesses and their specific demands, the authors deliver an unflinching gaze at the journey of the caregiver. With an author team comprised of three health communication researchers and a nurse and health literacy expert, this volume integrates literature addressing caregiver needs and burdens, communication theory and practice, palliative care and health literacy research, and the real stories of caregivers. Caring for the Family Caregiver presents the groundbreaking concept of the Caregiver Types and an innovative set of support resources to facilitate improved pathways to better care for the caregiver, making it an essential resource for providers, students, clinicians, policy makers and family caregivers alike.

At the Heart of Work and Family

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Publisher : Rutgers University Press
ISBN 13 : 0813550823
Total Pages : 299 pages
Book Rating : 4.24/5 ( download)

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Book Synopsis At the Heart of Work and Family by : Anita Ilta Garey

Download or read book At the Heart of Work and Family written by Anita Ilta Garey and published by Rutgers University Press. This book was released on 2011-02-01 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the Heart of Work and Family presents original research on work and family by scholars who engage and build on the conceptual framework developed by well-known sociologist Arlie Russell Hochschild. These concepts, such as "the second shift," "the economy of gratitude," "emotion work," "feeling rules," "gender strategies," and "the time bind," are basic to sociology and have shaped both popular discussions and academic study. The common thread in these essays covering the gender division of housework, childcare networks, families in the global economy, and children of consumers is the incorporation of emotion, feelings, and meaning into the study of working families. These examinations, like Hochschild's own work, connect micro-level interaction to larger social and economic forces and illustrate the continued relevance of linking economic relations to emotional ones for understanding contemporary work-family life.

Invisible Faces and Hidden Stories

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Publisher : Berghahn Books
ISBN 13 : 178920934X
Total Pages : 157 pages
Book Rating : 4.41/5 ( download)

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Book Synopsis Invisible Faces and Hidden Stories by : Cecilia Sem Obeng

Download or read book Invisible Faces and Hidden Stories written by Cecilia Sem Obeng and published by Berghahn Books. This book was released on 2020-11-01 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dealing with narratives of vulnerable populations, this book looks at how they deal with dimensions of their social life, especially in regard to health. It reflects the socio-political ecologies like public hostility and stereotyping, neglect of their unique health needs, their courage to overcome adversity, and the love of family and healthcare providers in mitigating their problems. The narratives inform us about the dissimilarity between the way we speak, what we hear and how we act. American society likes to give the impression that it is listening to the plight of vulnerable populations, but the stories in this volume prove otherwise.

Challenging Invisibility: Practices of Care

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Publisher : Chalice Press
ISBN 13 : 9780827205703
Total Pages : 180 pages
Book Rating : 4.08/5 ( download)

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Book Synopsis Challenging Invisibility: Practices of Care by : Karen D. Scheib

Download or read book Challenging Invisibility: Practices of Care written by Karen D. Scheib and published by Chalice Press. This book was released on 2004 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Applying Jewish Ethics

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Publisher : Rowman & Littlefield
ISBN 13 : 1793655316
Total Pages : 213 pages
Book Rating : 4.18/5 ( download)

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Book Synopsis Applying Jewish Ethics by : Jennifer A. Thompson

Download or read book Applying Jewish Ethics written by Jennifer A. Thompson and published by Rowman & Littlefield. This book was released on 2022-12-13 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: Applying Jewish Ethics: Beyond the Rabbinic Tradition introduces the reader to applied ethics and examines various social issues from contemporary and largely underrepresented Jewish ethical perspectives. The chapters explain and apply Jewish ethical ideas to contemporary issues connected to racial justice, immigration, gender justice, queer identity, and economic and environmental justice in ways that illustrate their relevance for Jews and non-Jews alike.

Strength & Courage for Caregivers

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Publisher : HarperChristian + ORM
ISBN 13 : 0310542332
Total Pages : 136 pages
Book Rating : 4.39/5 ( download)

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Book Synopsis Strength & Courage for Caregivers by : Terry Hargrave

Download or read book Strength & Courage for Caregivers written by Terry Hargrave and published by HarperChristian + ORM. This book was released on 2009-05-26 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Support, respite, and encouragement for those who care for othersTaking care of a family member who is ill, disabled, or dying requires courage, strength, commitment, and love. Now Terry Hargrave, an expert in counseling and caregiving, offers you help with a devotional written with your specific needs in mind. The morning prayers and evening reflections in this book are short and to the point. Strength and Courage for Caregivers weaves together powerful stories, practical advice, and the restorative promises of Scripture, reminding caregivers that they are not alone in this important yet all too often unacknowledged and underappreciated work.