Challenges And Opportunities In Using Residual Newborn Screening Samples For Translational Research

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309177138
Total Pages : 85 pages
Book Rating : 4.39/5 ( download)

DOWNLOAD NOW!

Download or read book Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research written by Institute of Medicine and published by National Academies Press. This book was released on 2010-11-23 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.

Author : Roundtable on Translating Genomic-Based Research for Health
Publisher :
ISBN 13 : 9780309383103
Total Pages : 84 pages
Book Rating : 4.02/5 ( download)

DOWNLOAD NOW!

Download or read book Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research written by Roundtable on Translating Genomic-Based Research for Health and published by . This book was released on 2010-11-23 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309159547
Total Pages : 84 pages
Book Rating : 4.48/5 ( download)

DOWNLOAD NOW!

Download or read book Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research written by Institute of Medicine and published by National Academies Press. This book was released on 2010-12-23 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.

Author : Ginette A. Pepper
Publisher : Springer Publishing Company
ISBN 13 : 0826157548
Total Pages : 402 pages
Book Rating : 4.46/5 ( download)

DOWNLOAD NOW!

Download or read book Annual Review of Nursing Research, Volume 29 written by Ginette A. Pepper and published by Springer Publishing Company. This book was released on 2012-05-29 with total page 402 pages. Available in PDF, EPUB and Kindle. Book excerpt: Print+CourseSmart

Author : Warren S. Browner
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1975174429
Total Pages : 589 pages
Book Rating : 4.22/5 ( download)

DOWNLOAD NOW!

Download or read book Designing Clinical Research written by Warren S. Browner and published by Lippincott Williams & Wilkins. This book was released on 2022-01-27 with total page 589 pages. Available in PDF, EPUB and Kindle. Book excerpt: For more than 30 years, Designing Clinical Research has set the standard as the most practical, authoritative guide for physicians, nurses, pharmacists, and other practitioners involved in all forms of clinical and public health research. Using a reader-friendly writing style, Drs. Warren S. Browner, Thomas B. Newman, Steven R. Cummings, Deborah G. Grady, Alison J. Huang, Alka M. Kanaya, and Mark J. Pletcher, all of the University of California, San Francisco, provide up-to-date, commonsense approaches to the challenging judgments involved in designing, funding, and implementing a study. This state-of-the-art fifth edition features new figures, tables, and design, as well as new editors, new content, and extensively updated references to keep you current.

Author : William W. Lowrance
Publisher : Cambridge University Press
ISBN 13 : 1139510827
Total Pages : 203 pages
Book Rating : 4.20/5 ( download)

DOWNLOAD NOW!

Download or read book Privacy, Confidentiality, and Health Research written by William W. Lowrance and published by Cambridge University Press. This book was released on 2012-06-21 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.

Author : Stefan Timmermans
Publisher : University of Chicago Press
ISBN 13 : 022627361X
Total Pages : 320 pages
Book Rating : 4.17/5 ( download)

DOWNLOAD NOW!

Download or read book Saving Babies? written by Stefan Timmermans and published by University of Chicago Press. This book was released on 2015-05-06 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309215366
Total Pages : 203 pages
Book Rating : 4.67/5 ( download)

DOWNLOAD NOW!

Download or read book Informing the Future written by Institute of Medicine and published by National Academies Press. This book was released on 2011-10-12 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report illustrates the work of IOM committees in selected, major areas in recent years, followed by a description of IOM's convening and collaborative activities and fellowship programs. The last section provides a comprehensive bibliography of IOM reports published since 2007.

Author : John G. Francis
Publisher : Springer Nature
ISBN 13 : 3030639282
Total Pages : 224 pages
Book Rating : 4.80/5 ( download)

DOWNLOAD NOW!

Download or read book Sustaining Surveillance: The Importance of Information for Public Health written by John G. Francis and published by Springer Nature. This book was released on 2021-03-17 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents a comprehensive theory of the ethics and political philosophy of public health surveillance based on reciprocal obligations among surveillers, those under surveillance, and others potentially affected by surveillance practices. Public health surveillance aims to identify emerging health trends, population health trends, treatment efficacy, and methods of health promotion--all apparently laudatory goals. Nonetheless, as with anti-terrorism surveillance, public health surveillance raises complex questions about privacy, political liberty, and justice both of and in data use. Individuals and groups can be chilled in their personal lives, stigmatized or threatened, and used for the benefit of others when health information is wrongfully collected or used. Transparency and openness about data use, public involvement in decisions, and just distribution of the benefits of surveillance are core elements in the justification of surveillance practices. Understanding health surveillance practices, the concerns it raises, and how to respond to them is critical not only to ethical and trustworthy but also to publicly acceptable and ultimately sustainable surveillance practices. The book is of interest to scholars and practitioners of the ethics and politics of public health, bioethics, privacy and data technology, and health policy. These issues are ever more pressing in pandemic times, where misinformation can travel quickly and suspicions about disease spread, treatment efficacy, and vaccine safety can have devastating public health effects.

Author :
Publisher :
ISBN 13 :
Total Pages : 608 pages
Book Rating : 4.30/5 ( download)

DOWNLOAD NOW!

Download or read book The Writers Directory written by and published by . This book was released on 2013 with total page 608 pages. Available in PDF, EPUB and Kindle. Book excerpt: