Caring For Children Who Have Severe Neurological Impairment

Author : Julie M Hauer
Publisher : JHU Press
ISBN 13 : 1421409372
Total Pages : 479 pages
Book Rating : 4.75/5 ( download)

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Download or read book Caring for Children Who Have Severe Neurological Impairment written by Julie M Hauer and published by JHU Press. This book was released on 2013-08 with total page 479 pages. Available in PDF, EPUB and Kindle. Book excerpt: An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.

Author : Richard Hain
Publisher : Oxford University Press
ISBN 13 : 019882131X
Total Pages : 535 pages
Book Rating : 4.11/5 ( download)

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Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-03-24 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Author : Stefan J. Friedrichsdorf
Publisher : MDPI
ISBN 13 : 3038973505
Total Pages : 253 pages
Book Rating : 4.08/5 ( download)

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Download or read book Pediatric Palliative Care written by Stefan J. Friedrichsdorf and published by MDPI. This book was released on 2019-02-08 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children

Author : Maisha T. Robinson
Publisher : Case Studies in Neurology
ISBN 13 : 110840491X
Total Pages : 187 pages
Book Rating : 4.14/5 ( download)

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Download or read book Case Studies in Neuropalliative Care written by Maisha T. Robinson and published by Case Studies in Neurology. This book was released on 2018-06-28 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: This guide delivers problem-based scenarios in neuropalliative care; improving quality of life for patients with neurologic diseases.

Author : Juerg Hodler
Publisher : Springer Nature
ISBN 13 : 303038490X
Total Pages : 252 pages
Book Rating : 4.06/5 ( download)

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Download or read book Diseases of the Brain, Head and Neck, Spine 2020–2023 written by Juerg Hodler and published by Springer Nature. This book was released on 2020-02-14 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book offers an essential overview of brain, head and neck, and spine imaging. Over the last few years, there have been considerable advances in this area, driven by both clinical and technological developments. Written by leading international experts and teachers, the chapters are disease-oriented and cover all relevant imaging modalities, with a focus on magnetic resonance imaging and computed tomography. The book also includes a synopsis of pediatric imaging. IDKD books are rewritten (not merely updated) every four years, which means they offer a comprehensive review of the state-of-the-art in imaging. The book is clearly structured and features learning objectives, abstracts, subheadings, tables and take-home points, supported by design elements to help readers navigate the text. It will particularly appeal to general radiologists, radiology residents, and interventional radiologists who want to update their diagnostic expertise, as well as clinicians from other specialties who are interested in imaging for their patient care.

Author : Pauline M. Pope
Publisher : Butterworth-Heinemann Medical
ISBN 13 : 9780750688253
Total Pages : 284 pages
Book Rating : 4.54/5 ( download)

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Download or read book Severe and Complex Neurological Disability written by Pauline M. Pope and published by Butterworth-Heinemann Medical. This book was released on 2007 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: This title is directed primarily towards health care professionals outside of the United States. This book presents a holistic approach to the complete, long-term, day-to-day care of patients disabled by neurological conditions, emphasizing practices that promote physical well-being and minimize secondary complications. It focuses on physical management within the context of the lifestyle of the disabled person and primary caregiver. In addition, it highlights the difficulties commonly encountered when implementing a physical management regime, and discusses the importance of compromise. The complete physical management and day-to-day care is described in a practical and applicable way. Best practices are presented in relation to caring for a person with profound impairment and residual disability. Holistic and detailed long-term physical management strategies are described, related to the more severe and complex neurological conditions. Real-life examples help readers understand the applications of theory in practice. Case studies strengthen readers' critical thinking and decision making skills. Social considerations and the importance of therapeutic leisure activities are included.

Author : Frances Dominica
Publisher : Radcliffe Publishing
ISBN 13 : 1846193338
Total Pages : 349 pages
Book Rating : 4.30/5 ( download)

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Download or read book Perspectives on Palliative Care for Children and Young People written by Frances Dominica and published by Radcliffe Publishing. This book was released on 2010 with total page 349 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book opens a global discussion of palliative care for children and young people. It invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics.

Author : World Health Organization
Publisher : World Health Organization
ISBN 13 : 9241548371
Total Pages : 442 pages
Book Rating : 4.73/5 ( download)

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Download or read book Pocket Book of Hospital Care for Children written by World Health Organization and published by World Health Organization. This book was released on 2013 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.

Author : Philip D. Nowicki
Publisher : Springer Nature
ISBN 13 : 3030465748
Total Pages : 305 pages
Book Rating : 4.42/5 ( download)

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Download or read book Orthopedic Care of Patients with Cerebral Palsy written by Philip D. Nowicki and published by Springer Nature. This book was released on 2020-06-22 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many of the existing books focusing on the orthopedic management of patients with cerebral palsy encompass only care for the young patient, but this practical text reviews and delineates orthopedic care for patients with cerebral palsy throughout the lifespan. Readers will find a discussion of both non-operative and operative orthopedic management across all ages and functional levels. The text presents a general overview of cerebral palsy, evaluation of patients with cerebral palsy, and procedures commonly used to treat various orthopedic conditions in patients with cerebral palsy. Spasticity management and gait evaluation are likewise highlighted, and surgical chapters cover techniques for the hip, knee, foot and ankle, and spine. It also incorporates chapters focused on issues related to the rehabilitation of patients with cerebral palsy, including bracing, orthotics and other durable medical equipment, physical and occupational therapy, pain management, and adaptive activities and sports, which aim to improve the overall quality of life for patients through the lifespan. Finally, there is a chapter focused on the care transition from childhood to adulthood, an area of importance often neglected in current texts covering patients with cerebral palsy. Whether in the operating room, multi-specialty clinic or private office, Orthopedic Care of Patients with Cerebral Palsy will be a go-to resource for orthopedists, pediatricians and all medical professionals caring for this population.

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309170931
Total Pages : 458 pages
Book Rating : 4.32/5 ( download)

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Download or read book Neurological, Psychiatric, and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.